WHEN A CAREGIVER GETS SICK | CYSTIC FIBROSIS COMPLICATIONS


[both] Good morning! I thought today for our Monday video it would be kind of comical to interview Peter because he is sick right now and I wanna get his take on what it’s like to be the sick person. I think it’s ironic that, like, what was it four weeks ago we made a Monday video right here in this spot. [Mary laughs] And we pretended to have the flu. ♬ Don’t you think we’re better together ♬ ♬ Oh Honey ♬ ♬ I think we are ♬ [Mary] We’ve got Peter all set up with everything he needs. He’s got his gold fishy pretzels, [Mary] he has his tea, he’s got his kombucha, water, tissues, thermometer, [Mary] ibuprofen. I’m set. [Mary] He’s all set, and I’ve been [Mary] staying far, far away, but I thought just for this little interview, I’m gonna sit here and ask Peter some questions, so. I’m nervous. [Mary] Are you? I just woke up from sweating all over. [Mary laughing] Aww! So, ask away. [Mary] So give us the top three things you learned about being sick, being the sick person. Well, it’s not very fun. Fevers feel like…doodoo. [Mary laughs] And you feel bad. I feel bad, like, being in bed, and… [Mary] What do you mean by feel bad? Well, I feel bad that Mary has to like fend for herself because I am not… [Mary] Yes, I feel that. In my opinion, it feels like guilt. I always feel guilty, [Mary] like I’m not doing my part in the family or whatever. [Mary] But just like you always tell me like it is totally okay to just be, [Mary] and be sick and let your body fight, and… I think it’s just harder when your spouse or someone else in the house is like, chronically ill, like, you feel bad getting sick and so that’s yeah, that guilt factor. [Mary] Yeah. But Mary’s been awesome taking care of me. [Peter burps] [Mary] Good one! You’re allowed to do anything when you’re sick. [Peter laughs] [Mary] One benefit of being sick. Yeah. [Mary] Okay, so one factor in our family because I have Cystic Fibrosis, we have to be extra careful about germs, so if Peter shows symptoms of germs we immediately stop kissing, stop sharing any drinks or food, really be cognizant of what you’ve touched and washing your hands very frequently. I saw, I saw a comment I think a couple weeks ago where somebody said like what do you guys do when Peter gets sick because like obviously we have to avoid germs for Mary and… and I think the commenter said, does he’s like stay in a yurt in the backyard? I thought it was so funny. [Mary] So we are installing a yurt tonight. Yeah. No, we have this guest bedroom that I slept in last night, and I’ve been in here all day and Mary opened the window to give a breeze in here. And we have the air filter running. [Mary] Yeah, we have like a HEPA air filter. We had it on turboblast. Yeah, but basically we do our best to keep me quarantined basically. [Mary] Right. Um. And then I know Mary’s been cleaning today, like, washing the sheets. [Peter burps] Excuse me. And… so I like yes, in an ideal world there wouldn’t be a sick person in the house. [Mary] Correct. But we do our best to keep me separate and thankfully I haven’t been sick. We were just talking about I think like last time I… like was real sick was probably 2 and a half years ago. [Mary] Yeah, we weren’t living here. It was before we lived here. But I’ve had like smaller colds since then I think. [Mary] Yeah. But…so we just try to be smart and safe and do what we can and obviously there’s that reality that… germs you can’t see and… [Mary] Yep. But that’s what we do. We also realized that I was already exposed to whatever he has in the days prior because literally the night before he became symptomatic, hours before he became symptomatic we were hanging out just like normal. We were in the same bed obviously, sharing blankets and whatever, we were being together, and then he woke up in the middle of the night and he said he felt like his throat was sore and then… It was just like there’s no way to eliminate being exposed and that’s also why we’re careful in public because just because our friends say that they don’t feel any symptoms, and they don’t have any symptoms, they could already be coming down with something. That’s why we’re really cautious with like trying not to give hugs very often and that sort of thing. One of the things that I don’t think I’ve ever had sickness come on so quickly, like usually it’s…I don’t know, when I’ve gotten sick it’s like one day I’ll have a little bit of sore throat and it’s like oh, I wonder if I’m getting sick. [Mary] Yeah. But I felt completely normal on Saturday and Sunday morning woke up, and it was like I’m sick. And then, like… I was at church that morning and [Mary] Because it just felt like a sore throat. Yeah, I was, you know, I was being careful about germs and everything and…but I was leading the church service and… obviously that wasn’t great on my throat, but then after church it just like starting going downhill quickly. It was weird but I don’t know. [Mary] And then this morning is when you got the fever and body aches and just not feeling good. But I am really curious, this is the first time Peter has been this kind of sick since I’ve been on IVIG. And I am so curious if I’m not gonna get sick. And if I don’t get this sickness, I’m gonna be like IVIG is amazing! Whoo! The reality is I mean I’m a very, like, realistic person, so I feel like I’m probably gonna get some form of this illness, because like I said we’ve been together and there’s no way to perfectly eliminate these germs. I feel like I probably will get some symptoms but hopefully it won’t be full-blown badness and we’ll just deal with it. I mean, that’s reality. You can’t eliminate being exposed, you can’t live in a bubble and so we try to put me in a bubble by doing IVIG, but… And we went on this trip. I mean I think the irony of all this is like I am sitting in that spot where we talked about tips on not getting the flu, and then you know one of those big tips was like don’t go on a trip where you ride on an airplane and so it feels like oh, we went against our own advice. [Mary] Well, we waited til flu season was… We waited until, you know, flu season was a little farther along and but the reality of it all is is… we said this in our vlogs while we were traveling, like, we accept the consequences of making this trip because at the end of the day like we felt like this was a window where we could get away, and we knew it would take a toll on Mary’s body. We didn’t, you know, I think when we said we accept the consequences we weren’t thinking of me getting the flu. [Mary] Right. But I accept that like we did fly on an airplane. I think the guy across the aisle was sneezing, like, there’s those realities, and I don’t know. I mean… [Mary] Yeah. So we just have to get Peter [Mary] thoroughly rested and ready for this coming weekend. He has two church services to plan. [Mary] So, that’s what we’re gonna do, and… [both] As always, we will see you tomorrow. Good night! ♬ And don’t forget to give Peter a thumbs ups for, um, hopefully it’ll cheer him on to feel better soon. And goodnight Ollie Boy! [Mary talking as Ollie] Goodnight everybody! ♬♬

Comments 94

  • First like!!๐Ÿ’˜๐Ÿ’•โค๏ธ๐Ÿคค

  • ุจุงู„ุชูˆูˆูˆูˆููŠู‚ ุงุญุจูƒู…๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜™๐Ÿ˜˜โคโคโคโคโคโคโค๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’–๐Ÿ’•๐Ÿ’•๐Ÿ’–๐Ÿ’–๐Ÿ’•๐Ÿ’œ๐Ÿ’œ๐Ÿ‘

  • Love your videos โค๏ธ

  • Aw poor Peter. Iโ€™m glad heโ€™s feeling better now, and that you all had a wonderful Easter full of family and friends!

  • I absolutely love your videos!

  • Now he's sick!! Get better Peter!! I really admire your positive attitude!! Keep up with the positivity and great videos!! ๐Ÿ˜˜๐Ÿ˜˜

  • We pulled out the camera while Peter was sick and took a few minutes to talk through some thoughts on when a caregiver gets sick. We know that many of you care for loved ones, so we want to encourage you to keep on going. Your act of love is not unseen!

  • I totally understand where you are coming from with the guilt factor. My significant other is my care giver but when he gets sick I feel helpless because my immune system is really bad.

  • Wheres my Peter? We all need a Peter in our lives ๐Ÿ˜‰

  • Early๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ

  • Hi guysโค

  • The flue stinks. So happy that Peter is better and able to preach at both church โ›ช services.
    God had your back thatโ€™s for sure. Itโ€™s like He said, Peter my son, if you wonโ€™t take time for you then Iโ€™ll just help you along. You WILL be better to preach the Good Friday service and Easter service.
    Mary He made certain that you could take care of Peter too. Two people that love Jesus so much and I love that.
    Love ๐Ÿ’— yโ€™all

  • Feel better soon Peter…

  • we accept and understand marys consequences and we have taken those as they may come. We do not have any expectation for peter to get sick. Ooopse lol it happens to the best of use. Hope the cold/flu has done all it will in the family. I think its good for Mary's soul for Peter to get sick every once in a while. I would assume that it helps to be the caregiver when you are so often the one being taken care of.

  • Have you seen any tornadoes were u live at ?

  • I'm glad he's feeling better now. He sounds like he felt really icky.

    Mary, I hope your clinic appointment goes well today and that your cold doesn't last too long.

  • I love you guys so much u get me through everything
    You make me smile when nobody else can

  • You can catch anything even from the grocery store ,,Like you said you can not hide from germs ,there are way to many ,,Glad Peter is doing better ๐Ÿ™‚ ..and i hope you Mary are feeling better since you had it also .

  • Are you soo excited over 202000 subs you go frey life

  • Iโ€™m early for once. Iโ€™m glad that you are feeling better

  • that guilt factor is the WORST! my husband and son do SO much and I totally feel guilty when I'm not able to do much

  • I totally know this feeling! My boyfriend takes care of me on my bad days, and I was having a ROUGH week when he got food poisoning! I wanted to switch right into care giver mode, even though he normally takes care of me. He felt bad, I was exhausted but luckily he wasn't contagious so I could actually help him instead of hiding!

  • 99.9% of the time, I get sick after flying. Thatโ€™s even after I wipe down the entire seat and tray with antibacterial wipes. I just canโ€™t escape it.

  • whit peters work and being around people he is around jurms to and now it cout up whit him its what you say some times you cant get around it hope you feel better soon

  • Peter I hope you feel better. ๐Ÿงš๐Ÿปโ€โ™‚๏ธ

  • Im glad your better now โค๐Ÿ‡

  • Was this filmed last week because I thought Peter was better now

  • Awf feel better better kick throw you cold โค๏ธ

  • Hope you 2 feel better soon ,keep up the good work.love from us โค๏ธ

  • Mary ive been watching some old videos! how about dye your hair purple again please!!! ๐Ÿ˜

  • Get well soon again Peter ….
    Allow your body to get rest and to fully recover ….. Love to you both … Herma โš˜โš˜๐Ÿ†

  • I just got home from the doctor. Started with a sore throat Saturday evening and Sunday morning I was terribly sick. I hope you feel better.

  • Peter I hope you are feeling better rest upโค๏ธ Happy Monday the frey life

  • The time I seemed to get sick the quickest was the winter H1N1 was going around and I got it. At least it was going around in Michigan. One evening I literally felt perfectly normal and the next minute I just felt sick and didn't know why. It was crazy, it was like I'd been hit by a bus and it affected me that fast.

  • Peter get well soon,u look sp sad,but mary on top of things, mary fo not do to much yourself,ollie is going to have to take care of BOTH of u.,๐Ÿ˜ท๐Ÿค’๐Ÿ˜œmuch love.

  • I am so happy that peter is feeling better, hope you had a good Easter

  • When I get sick, I have to fight it by myself because my husband works the whole day, and my kids are little and at school. So don't feel helpless or guilty when Peter gets sick. Thankfully he's a strong man and he understands it's nothing compared to your condition. Blessings๐Ÿ’ž

  • Id love for y'all to make merch of Ollie in his service dog vest as a plush I'd love to have Ollie at work plush. My sweet twin God daugthers love y'all so much Ollie (Olive) and her twin Livvy (Olivia) say Frey Life its really cute.

  • That must be tricky when Peter gets sick. Never thought of that. He doesn't seem to get sick very often. Hope you had a great Easter.

  • amy dale is wearing her frey life t shirt on todays video!!!

  • Aww this was such a sad but sweet video, seeing peter sick and you wanting him to be better but then in the same instance youโ€™re sick all the time and he always wants you to be better, shows how strong your love for each other is. ๐Ÿ’› Happy belated Easter!

  • I so want to clone Peter he is such a wonderful guy

  • I hope you both feel better soon. I have a suggestion. Maybe when you are in congested areas like an airport, Peter might want to wear a mask too. It was just a thought. I hope your Easter was Happy. Your in my prayers.

  • You guys are a mess ๐Ÿ˜€! I love watching your videos! They are inspirational because through your ups and downs you guys are so positive about life! I just ordered my pop socket and new giraffe iPhone case and canโ€™t wait to receive them!

  • ๐Ÿ‘๐ŸŒˆ

  • Change the pillow cases from getting a fever again.

  • I have cancer and seven kids . I also work in the pre school room at church . So when my anc is low I have to stay home and pray my kids stay well . Feel better Peter ! Praying Mary you stay well and don't get it .

  • Peter you're sick you need to stay in bed I know you enjoy taking care of Mary but you have to get well. I don't know if you guys know you can get Home Health Care aides who can come in and care for Mary while you're getting well. And Peter I know you are a pastor but you should have stayed home and rest on Sunday. Your # 1 priority is yourself and marry then your ministry. l love you guys. God bless and I hope you get better very soon.โค

  • Last time he was sick, he was on a blue couch!!!

  • My daughter starts taking airborne a few days before flying and she thinks it helps

  • Would y'all suggest the whole family wear mask on a plane when you are traveling with a low immune person?

  • I had this last year and it felt like I was hit with a ton of bricks and I hurt everywhere. Ugh.

  • Oh my goodness! The first video I watched of you guys (after finding you via dollar tree hacks) was when pete was sick the last time! I can't believe that was 2.5 years ago!!

  • Iโ€™m looking into supplemental meals for my husband. Have you tried Liquid Hope nutrition?

  • We pull out the hurricane supplies when weโ€™re both sick. Reduce dishes and other chores as much as possible. Even with that I tend to overdo it when Iโ€™m the healthier one and then utterly crash when he gets better.

  • Aw that 'sicky' voice, I am glad he is doing better…my hubby and I separate as well when one if is sick….of course it would be ideal if we were sick at the same time……Oh, and don't kiss the dog, they can get your cold as well. ๐Ÿพ

  • Shouldn't Mary wear a mask while around Peter while they are close, such as filming?

  • People always seem to get sick on a plane being in a tin can

  • Not judging….just wondering…..maybe you guys shouldn't share drinks and utensils in general? Just in case?

  • Peter said Doo Doo! ๐Ÿ˜† yes my inner 5 year old has come out.

  • Mary, I just watched your VLOG on discussing the possibility of transplant. I just wanted to let you know that I am also a person of faith. God is always at our side and takes our hand in His and walks us through all the tough times. You are women of faith, so keep up your trust in Our Almighty God. He never forsakes us and He will get you through. We each have a cross to bear, but if we trust God fully the burden of our own crosses won't see, so unbearable. God gives us the support of loved ones and friends to support us through the rough times. They become the Simons that assist us in bearing our crosses. You too are a Simon when you share your story with others, because of the faith and hope you display can be an inspiration to all who suffer with chronic illness. God Bless you!!!

  • Oh, the irony!! Hope everything went well at clinic today ๐Ÿ™‚

  • Hi there how are you today?? I am good. mom and i dyed eggs and I put away my winter cloths and got my spring /summer outfits.We traveled to my aunt Marciaโ€™s house to celebrate easter and spent the night. we are home now. it was so much fun.

  • Poor peter! Feel better soon..salt water gargle, chicken soup, and vicks. Did u get your flu shot yet peter ?

  • Love you

  • Do you what that's called ? LOVE !!!! And that's how you get through the bad times.
    Hope you two get
    better SOON ! And its that beautiful 4 letter word LOVE ๐Ÿ’œBONNIE

  • You know, if Peter wore a mask on the plane too it might help.

  • I mean no offense at all by this, just a mere observation but I do kind of think it's funny that you say you have to be extra careful about germs but yet we see you guys sharing stuff so often… I have an autoimmune disease and my husband and I are very sensible about cross contamination. For example, we don't drink out of the same cups, eat off the same utensils etc (the washed ones we share obviously but I mean like once we are using it we don't share). This is because it is proven that you are contagious well before showing signs for most things, which means you shouldn't drink out of the same cup on a daily basis since you would be catching it too before you would even know their sick… Obviously living in close proximity to someone makes it almost impossible not to share germs to some degree, but it GREATLY reduces some cross-contamination if you will. It should not be offensive or anything of the sort to your partner if you do not share things (like oh, you won't share a cup with me?! etc), rather they should want that for your health. Having said that, I understand romantically that it's a little hard to not share germs, but cutting out the sharing of cups etc really helps reducr the added chance of catching something. I know it's none of my business, but just wanted to share in case others are in a similar situation ๐Ÿ™‚

  • You guys are great, thank you for all the work you put into your channel! Hope you're doing well, God bless

  • Would it help if both of you wore a mask when going on a plane and such?

  • Make sure you change bed sheets often when you're sick.
    Get better Peter.

  • Friends can also be carriers of the illness and you can get it this way. When ever I go over to my best friends house their children are carriers and I end up getting sick every time so we limit my exposure to them. For me it is inevitable with no immune system I get everything that goes on around me. This was a great video. You are exactly right. We can't just live in a bubble. I need to get out and visit our friends time to time. I would still get sick because my boyfriend is a carrier so when people at his job get sick I get it. There is just no fool proof way.

  • Glad you're better now and hoping Mary's version of this wasn't too bad!

  • Mary does not cough in this video. I know it's not a normal video, but she does not cough.

  • I did the same thing. Went to bed feeling amazing, woke up like 3 hours later and I was sooooo sick. Day 1 was just yuck. Day 2 (easter) I lost my voice. Day 3 (today) I felt better…until I didnt..hope you get feeling better soon!

  • I swear I thought I already watched this? Rerun???
    A mask will not keep you from getting sick you are still breathing the same air everyone else is . Masks are for the sick to not spread germs if the cough, sneeze or breath on others. People carry viruses for two weeks in their body sometimes. You never know if you touched merchandise at a store or even if it was delivered to your door. It may have been handed by a sick person Iโ€™m a nurse.

  • Thankfully I have a pretty good immune system despite all my chronic illnesses. Except, it did destroy my pancreas, but I'm all about forgiveness lol

  • Mary and Peter, I can absolutely relate to this. My brother had a trach the last 6 years of his life. I got the flu, and of course I had to stay home from school. . . I was stuck on one side of the house and he was on the other. My mom would go between the two of us. She was constantly washing her hands. With the help of his nurses he didn't get the flu. Man those were a rough few days. We loved being together, so I can only imagine what this is like for you guys. Hugs, prayers and love to you both, and Olie

  • I cannot take ibuprofen it makes me breakout in bruises and causes nearly unbearable pain in those areas…

  • i know that issue to well… I have Primary Immunodeficiency Disease(PIDD), a lung disease and POTS and everything has to be germ free for me or I could be hospitalized and when my husband/caregiver gets sick we have to what we can to try to not me sick which isn't easy sense you can't really run from germs 100% but you just have to do what you can do anyways hope peter gets better and hope you don't catch whatever he has mary

  • Don't claim it. Rebuke it in Jesus name

  • Iam diabetic. My hubby gets sick its like done

  • I love your videos. thanks for sharing your life with us.

  • I am sick right now and you guys make me feel so much better thank you

  • If you get it over there use Vickโ€™s vapour rub , rub on soles of feet then put your socks on and climb into bed

  • My partner and I live with his parents and his mom recently passed from ovarian cancer that she had been fighting for a long time. I definitely understand Peter when he says "you feel guilty getting sick when someone you love has a chronic illness". I never wanted to say that I felt ill because I knew she felt ill in ways that I could never fathom. But she was the strongest person I know.

  • Peter should wear a mask when flying too. You said in another video that sickness is a concern for the upcoming research study.

  • So, I guess I'm not a trendy person, but I know Kombucha is big right now. But what is it?

  • What sickness did he have.

  • I have pulmonry hypertension and heart failure. My husband was my caregiver but he got sick with diabetes kidney failure and then died from heart failure.

  • I live in England

  • My husband and I both have the flu this week. I will be so glad when we feel better.

  • Mary not too long ago my whole family had gotten sick i didn't get sick I've been getting IVIG sense I was really young so IVIG helps a lot

  • For one of your Monday videos, you should do one totally from Ollieโ€™s point of view

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