“Great Strides” Leads The Fight Against Cystic Fibrosis


REST OF THE WEEK AND ACTUALLY ON TUESDAY LOOKING REALLY SENSATIONAL. CINDY, OVER TO YOU. THANKS VANESSA. NEXT SUNDAY THOUSANDS WILL TAKE A STEP IN THE RIGHT DIRECTION. THEY’RE GOING TO BE MAKING GREAT STRIDES IN THE FIGHT AGAINST CYSTIC FIBROSIS. CBS2 AND OUR SISTER STATION WLNY TV ARE PROUD MEDIA SPONSORS OF THE EVENT. HERE TO TELL US MORE IS CAROLYN CRANDALL THE FRIENDS AND FAMILY CHAIR OF THE MANHATTAN GREAT STRIDES WALK. WELCOME. THANK YOU FOR HAVING ME. LET’S TALK ABOUT WHAT CYSTIC FIBROSIS IS. CYSTIC FIBROSIS IS A GENETIC LIFE SHORTENING PROGRESSIVE DISEASE. IT’S A DISEASE THAT AFFECTS PRIMARILY THE LUNGS BUT ALSO THE PANCREAS AND GASTROINTESTINAL SYSTEM AND MANY OTHER ORGANS IN THE PEOPLE AFFECTED. TELL US ABOUT THE WALK COMING UP. THE WALK IS COMING UP SUNDAY JUNE 4th, AND IT’S A REALLY GREAT FUN FAMILY FRIENDLY EVENT. WE’RE EXPECTING HOPEFULLY AROUND 2,000 PEOPLE. I HAVE EMCEE’D THIS WONDERFUL EVENT. I CAN TELL YOU PERSONALLY IT’S FANTASTIC. IT’S HAPPENING IN FOLEY SQUARE IN LOWER MANHATTAN. IT’S ABOUT A 3-MILE WALK. THERE’S ENTERTAINMENT. THERE’S A DEEJAY, AND IT’S THERE TO RAISE FUNDS AND AWARENESS FOR THE CYSTIC FIBROSIS FOUNDATION. IT IS A REALLY GREAT WALK AND ALL THE ENTERTAINMENT IN THE BEGINNING. SO THIS IS ALSO VERY PERSONAL WALK FOR YOU. YOU HAVE TWO BEAUTIFUL SONS. TWINS. YES. CARON AND RAG. TELL US ABOUT CARON. SURE, SO IN THE UNITED STATES ALL CHILDREN ARE SCREENED FOR CYSTIC FIBROSIS AT BIRTH, AND CARON WAS — AFTER SUBSEQUENT TESTING HE WAS DIAGNOSED AT NINE MONTHS. SO HE IS VERY PRECOCIOUS. HE’S A WILD LITTLE THING, AND HE’S DOING REALLY WELL, SO HE IS AFFECTED BY THIS DISEASE AND OUR FAMILY IS REALLY AFFECTED BY THIS DISEASE. TELL US WHAT THE TREATMENT IS LIKE FOR THE FAMILY AND FOR CARON. TREATMENT FOR CYSTIC FIBROSIS IS TILE INTENSIVE, AND IT ONLY GETS MORE SO AS CHILDREN GET OLDER. FOR HIM RIGHT NOW TREATMENT IS APPROXIMATELY AN HOUR A DAY WHEN HE’S HEALTHY. WHEN HE’S SICK IT’S MORE LIKE TWO HOURS. SO IT INVOLVES HIM WEARING A VEST THAT SORT OF SHAKES UP AND THAT’S MEANT TO BREAK UP THE MUCUS IN HIS LUNGS SO HE DOESN’T HARVEST INFECTIONS IN THERE. HE DOES NEBULIZER TREATMENTS WITH THAT EVERY MORNING AND NIGHT, AND MOST PEOPLE WITH CYSTIC FIBROSIS ALSO TAKE ENZYMES WITH EVERY MEAL. HE’S NOT — DOESN’T REQUIRE THAT TREATMENT, BUT YOU KNOW, HE HAS MULTIPLE OTHER MEDICATIONS, PREVACID, APPETITE STIMULANTS, THERE’S A LOT OF THINGS THAT GO ALONG WITH THIS DISEASE. ONE REALLY IMPORTANT PART OF THE DISEASE IS GETTING THE MOST NUTRITION POSSIBLE. GAINENING A LOT OF WEIGHT MEANS HEALTHY LUNG FUNCTION IN PEOPLE WITH CF. IF THERE’S ONE THING YOU COULD TELL PEOPLE ABOUT CYSTIC FIBROSIS WHAT WOULD THAT BE? EVERYBODY ALWAYS SAYS HE LOOKS SO GREAT, HE LOOKS SO HEALTHY. PEOPLE WITH CYSTIC FIBROSIS OFTEN LOOK LIKE EVERYONE ELSE AND VERY HEALTHY AND THEIR BODIES JUST AREN’T WORKING ON THE INSIDE. WE’RE VERY CLOSE, WE’VE BEEN TOLD WE’RE CLOSE TO A CURE. WHEN CARON WAS DIAGNOSED AT NINE MONTHS OUR DOCTOR SAID IT’S GOING TO BE IN HIS LIFETIME, AND YOU JUST HAVE TO KEEP HIM AS HEALTHY AS POSSIBLE. SO THE MORE WE CAN DO TO MAKE THAT CURE COME SOONER THE BETTER. THAT’S WHAT THE WALK IS GOING TO HELP DO. YES, EXACTLY. THANK YOU SO MUCH FOR BEING HERE. THANK YOU SO MUCH FOR HAVING ME, AND THANK YOU SO MUCH TO CBS2 FOR THEIR CONTINUED SUPPORT OF THE CYSTIC FIBROSIS FOUNDATION AND GREAT STRIDES. VERY WELCOME. THE MANHATTAN GREAT STRIDES WALK IS NEXT SUNDAY MORNING AT

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