Double lung transplant for man with cystic fibrosis


MARLEE:..THERE’S MORE THAN 30- THOUSAND PEOPLE ACROSS THE COUNTRY LIVING WITH CYSTIC FIBROSIS RIGHT NOW–AND EACH YEAR… MORE THAN A THOUSAND PEOPLE ARE ADDED TO THAT LIST.KYLE:..THERE’S NO CURE FOR THE DISEASE JUST YET–AND AS 24 HOUR NEWS 8’S CASEY JONES SHOWS US… THE DIAGNOSIS TURNED ONE MAN’S LIFE AROUND IN A VERY UNEXPECTED WAY. 3 IF LIFE WAS CAPTURED IN THE MOMENTS…..WHAT WOULD IT LOOK LIKE?SMILES — AND LAUGHTER? TEARS?CONVERSATION OR JOY…. JAMES HEYBOER’S LIFE WOULD BE CAPTURED IN A SINGLE BREATH – DELIVERED IN A PHONE CALL. HEYBOER SAYS: IT WAS TOO PERFECT, IT WAS, 3 MONTHS TO THE DAY, THAT I GOT THE CALL. ON THE OTHER END — NEW LIFE — NEW BREATH IN A DOUBLE LUNG TRANSPLANT.HEYBOER SAYS: YOU TAKE BREATHING FORGRANTED BUT WHEN YOU’RE IN MY SITUATION, YOU’D LIKE TO BREATHE NORMALLY BUT YOU CAN’T.HEYBOER WAS BORN WITH CYSTIC FIBROSIS – A GENETIC DISORDER THAT CREATES A THICK MUCUS, AFFECTING THE LUNGS AND OTHER PARTS OF THE BODY.IT’S A TERMINAL DISEASE – WITH NO CURE.HEYBOER SAYS: I’VE ALWAYS LOOKED TOWARDS THE FUTURE BUT YOU NEVER KNOW WHAT THE FUTURE HOLDS THAT’S FOR SURE. CERTAIN DAYS ARE DIFFERENT THAN OTHERS, YOU HAVE YOUR GOOD AND BAD DAYS. 3 THAT FUTURE DIMMED SHARPLY FOR HEYBOER LAST FALL – MASKED BY NORMAL LOOK ON THE OUTSIDE – THE 30 YEAR OLDS INSIDES HAD CAUGHT UP WITH HIM – DOWN TO JUST 26% LUNG CAPACITY – HE WAS 100% RELIANT ON A TANK OF OXYGEN.HEYBOER SAYS: ((10135228)) ALL THE SUDDEN, MY BODY GO TO A POINT WHERE, WHEN I NEEDED THE OXYGEN IT WAS JUST DIFFICULT TO GO UP AND DOWN THE STAIRS, I HAD TO GO SLOW OR TAKE BREAKS HALF WAY. HEYBOER SAYS: NO ONE REALLY KNEW I HAD THAT GOING INSIDE OF ME, I JUST WAS, WORKING AWAY.ON DECEMBER 5TH OF LAST YEAR HE WAS PLACED ON THE TRANSPLANT LIST – LIFE WENT FROM STRUGGLING FOR EACH BREATH – TO WAITING.HEYBOER SAYS: WE ALL JOKED THAT I WOULD GET THE CALL PROBABLY ON MY BIRTH DAY OR THAT NIGHT OF THE EVENT. I’M LIKE, OH IT WON’T HAPPEN. BUT MY BIRTHDAY 3 CAME AND WENT, MY 30TH BIRTHDAY CAME AND WENT AND, NOPE, NOP CALL YET, SO. HEYBOER’S MOM – BETH – BECAUSE OF JAMES, HELPED FOUND FRIENDS AND FAMILY OF CYSTIC FIBROSIS – A CHARITY THAT HELD THEIR 20TH ANNUAL AUCTION – BID FOR BACHELORS AND BACHLORETTES – MARCH 4T – THAT WAS THE JOKED ABOUT EVENT.BETH WAS UP ON STAGE TALKING TO THE CROWD. HEYBOER SAYS: SHE JOKINGLY TOLD EVERYONE THAT THEY HAD TO BE OFF THEIR CELL PHONES AND JUST BID AND PAY ATTENTION TO THE EVENT, EXCEPT FOR HER SON THAT WAS WAITING FOR A PHONE CALL FOR A LUNG TRANSPLANT. THIS CROWD WAS ONE JAMES GREW UP WITH – THEIR RELATIONSHIP, IN THE CHARITIES TITLE – FRIENDS AND FAMILY.BETH HARDLY HAD TIME TO SIT DOWN BEFORE HER SON’S CELL PHONE RANG. HEYBOER SAYS: SO I ANSWERED AND THEY SAID IS THIS JAMES HEYBOER AND I SAID, YES IT IS. AND SHE SAID, WELL, I HAVE A PAIR OF NEW LUNGS FOR YOU AND I WASN’T SURE WHAT TO SAY. I DON’T THINK I SAID ANYTHING, I THINK I JUST STARTED TO CRY.AS THE FAMILY WIPED AWAY THE TEARS – THEY RUSHED TO SPECTRUM – JAMES’ LUNGS ARRIVED TO A LINE OF FAMILY AND FRIENDS.HEYBOER SAYS: YOU JUST FELT CALM. I JUST FELT LIKE THE LORD WAS THERE EITH EVERYONE, WITH MY FAMILY AND EVERYTHING WAS GOING TO BE GOOD.FOR 14 HOURS, HEYBOER’S SICK, MUCUS FILLED LUNGS WERE REPLACED WITH A SECOND CHANCE.JAMES HEYBOER DOESN’T COUNT HIS BREATHS ANYMORE.HE COUNTS HIS MOMENTS – NFIVE YEARS WITH HIS WIFE MARISSA. THEIR 2 AND A HALF YEAR OLD AND LEVI.A GIFT FROM A STRANGER – MARKED BY TWO SCARS CUT ACROSS HIS CHEST.AND A PHONE CALL – A BREATH OF NEW LIFE.HEYBOER SAYS: I CAN MOVE FORWARD IN MY MY WIFE, WATCH MY BOYS GROW UP, SO. YEAH, IT’S QUITE AMAZING.CASEY JONES, 24 HOUR NEWS 8. 3 3 HOUR NEWS 8.CASEY JONES, 24 QUITE AMAZING.SO. YEAH, IT’S QUITE AMAZING.CASEY JONES, 24 HOUR NEWS 8. 3 KYLE:..JAMES NOW HAS A LUNG CAPACITY OF 60%, A NUMBER SIMILAR TO WHEN HE WAS 15. TOMORROW MORNING AT TEN-O- CLOCK IS THE “GREAT STRIDES 5K WALK”… WHICH WILL BE AT MILLENIUM PARK IN WALKER.MARLEE:..THIS IS THROUGH THE CYSTIC THIS IS THROUGH THE CYSTIC FIBROSIS FOUNDATION, WHICH IS áNOTá AFFILIATED WITH FRIENDS AND FAMILIES OF CYSTIC FIBROSIS. JAMES TELLS US HE WON’T BE WALKING IN THIS…BECAUSE HE’S STILL RECOVERING FOR AT LEAST THE NEXT YEAR OR SO.

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