🏥 CYSTIC FIBROSIS SINUS SURGERY 🏥


[Peter] Hey Mar, you ready for no headaches? See you on the flippity flip. [Peter] Alright, off to surgery. Hi! ♬ Oh, you gotta breathe, breathe, breathe, breathe ♬ ♬ Let it go and let it be, be, be ♬ Surgery day starts the night before, so good morning! Good morning, because might as well be morning because we’re gonna be up in a few hours. Yeah, so, the night, the day before surgery we re-accessed my port because it was gonna be due on surgery day. But that wasn’t gonna be a good plan. So we just did a fresh needle. Other things, you know, you’ve got to have your last meal before you’re NPO, which is, don’t eat… after midnight, and then I always get this fear that I’m gonna get super hungry at like, 12:05 and not be able to eat, but um…I got hungry earlier. And so I had a hospital fish sandwich and some mashed sweet potatoes. Just what everybody wants for their meal before surgery. It sounded good, so I ate it. Why not? But thankfully the surgery is scheduled for first thing in the morning. So it’s not like Mary’s gonna be waiting around all day, and then… What else? Shaved my legs. Feel ready for surgery, even though they’re just going in my nostrils. Um… Yeah, and then tonight Mary got a bloody nose. I come back from a walk with Ollie and Mary’s nose is bleeding and I’m like, you haven’t had surgery yet. You’re not supposed to be bleeding! Anticipatory… Uh… Pre-emptive anticipatory bleeding, I suppose. So that’s not a great sign. It’s actually kind of concerning. Yeah, so, we’ll… I guess we’ll go for… I don’t know. I’m wondering if they’re gonna test my platelets again tomorrow. I wonder. Or they’re probably just gonna… I don’t know, cuz they just tested them today. But my nurse was in here, and um… So that was good. She knew all about it and, and then my nose stopped bleeding and then I started coughing. The pressure from coughing made it start bleeding. So, it’s been a… I didn’t get to see fireworks, but it’s been an explosive evening. [chuckling] So we are gonna try to get some sleep, a little bit before we get up early in the morning and head down to… pre-op and uh, if you’re just clicking on this video, Mary’s getting sinus surgery. Over… the course of the last couple months, the… infection in her sinuses has gotten worse and gives her headaches. And… Yeah. We don’t know how much that plays into her lung health and all that. So we want to try to minimize that. And the IV antibiotics do kind of a temporary job of suppressing… the infection, and so… um, my headaches are already doing a little bit better since being on the IVs, but what we know is… that that temporary fix from the IVs is, is just that, temporary. So that’s when sinus surgery comes into play. Time to do some… sinus surgery. So, I don’t even feel nervous tonight. I’m sure… I’m guessing tomorrow morning I will, or maybe my body’s just like… Girl, it’s time. I thought at 11 o’clock at night I was gonna be nervous. But at this point I’m not. I’m glad. So we’re just gonna get some sleep and we’ll see you at surgery time. Good morning guys. It’s uh… 5:45 in the morning. We’re just waking up to get ready for surgery and part of that is Mary… [coughing] Clearing her lungs. [coughing] Since she’ll be under anesthesia for the duration of the surgery, it’s important to try to get those lungs… [coughing] As clear as possible. [coughing] ♬ gentle music ♬ [vest machine vibrating] Alright, I’m awake. I’m alive. And my head doesn’t even hurt right now. It might hurt a little bit worse before it gets better, but we’re doing this so in the long run, I will have less headaches. I just opened up the windows so it’ll be nice and ready when we get back. Ollie and Peter are out on a walk. They’ll be back any minute and we are headed down to the OR. ♬ gentle music ♬ Okay, we made it down to pre-op and um… Got checked in with the nurse down here. And before we know it we’ll be… Mary will be heading back to sleepy land. Yep. Still feeling calm, ready, let’s do this. Hey, “let’s do this” was birthed- Oh yeah! Less than a year ago at my last sinus surgery. That’s true. Let’s do it. [Peter] Hey Mar, you ready for no headaches? Yes. [Peter] Ready? [Peter] Thumb war. I’ll see you on the flippity flip. I love you. Love you too. I love you too. I love you too. [Peter] Alright, off to surgery. Okay, Ollie and I are out in the waiting area just hanging out by the windows and waiting for Mary to be done. The surgeon will come out and give us an update once, uh… she’s complete and Mary’s in recovery, and so… They’re hoping that they could keep it pretty short, to keep the amount of time Mary’s lungs are under anesthesia. So we’ll see how long this takes. ♬ chill electronic music ♬ [Peter] Okay, we’re just waiting but the surgeon came out and said that Mary… they finished up with surgery. She’s still in the OR. They’re kind of, um… moving her toward recovery, but… surgery went well, and there was some new bone growth in her sinuses, which can happen with inflammation, that they had to clear out a little bit, but she said she tried to do it as gently as possible, and… clear out as much as she could, so she said hopefully this will lead to less headaches and a little bit clearer sinuses, but as we know with CF, they’re gonna fill back up, but um, doing this was kind of necessary, and… Hopefully opening up that one sinus area will help in the long run. ♬ gentle music ♬ [background chatter] [nurse] Hi, come on in. Poodle! I thought he was gonna be little. [Peter] Come up. There you go. Let’s lie down. Lie down. [Mary] Hi. [Peter] How you doing? [Mary] I’m good. Hi. Hi. Hi. Do I smell bloody? [nurse] Hello Oliver. Hi Peter, I’m Ann. [Peter] Hey. [Mary mumbling] [Peter] Oh, really? Yeah. [Peter] You okay? [Peter] Good boy. He’s looking at me funny. Hi. Hi. I was bleeding. Yeah. I love you bonsey. I love you Ollie. I love you Peter. [Peter] I love you too. Water. Spit. [nurse] More spit water? Okay, hold on. Are my eyes crusty? [Peter] Mmm, nope. They’re beautiful. Crusty. [Peter] Just have a little bit of blood splatter on your face. [patting] [Peter] Ollie’s the best. Mary’s getting a little chest PT. [Peter] Clear her lungs after surgery. [Peter] She’s doing good. [coughing] [beeping] [Peter] Headed back up to the room on her floor. [Peter] So far, so good. ♬ gentle music ♬ [Peter] Good job, hun. [Peter] Okay, we are back in our home away from home. So far, uh… Mary’s got a little bit of bleeding happening. I think a lot of it’s draining down to her stomach which, that happens after surgery, but uh… Trying to keep her really still so she doesn’t get nauseous and throw it up. Um…and… CF team came by right after we got to the room, which was highly unhelpful, but… [chuckles] Uh… I’m like, drugged. And asking like… Yeah, it’s just not a great time to have a conversation. But they were rounding at the moment. So. Um, Mary’s vanco level was low yesterday, the trough that we take to see kind of how her body is metabolizing it. And so they’re gonna do another measurement. They’re gonna take a… drug level two hours after her dose this afternoon, and then another one, another trough at midnight, I think and then pharmacy figures out, kind of how, how the dose is doing, um, because the trough looked low, but it might be okay. Anyways… And did you update them on what the surgeon said? Yeah, I gave them an update when I was waiting. Um, but… I’m encouraged so far that… bleeding hasn’t been too bad. When I was first, I mean, I was conscious enough to know what was happening. Well, the anesthesia didn’t go great, like… my body has this weird like… response to I don’t even know what. [Peter] I think its probably when they bring you out of anesthesia too quickly. I have no idea. Whatever it is, my body was just like… flailing about and um… I’m just like, mouthfuls of blood at that point. [Peter] Yeah. So they were like, trying to help me. Everybody’s been sweet today. [Peter] Yeah. But um… The one nurse in post-op was like… Oh, you’re sweet. I think I’ve had you before. I remember you being sweet. Aww, that’s so sweet. Nice people are nice. Mary brings a lot of smiles to people in the hospital. That or Ollie. I’m not sure. No, Mary does brighten a lot of people’s days. Before I went under, er, before I went back, I almost jokingly told Peter like, pick up the camera. I want to say this. Um… I had my hair in a ponytail and I had this, like, my biggest fear going into surgery is I’m gonna lose my… my favorite hair tie. Um, cuz I just use this hair tie. This is the hair tie I use. Whatever. It’s nothing special. And then she’s in recovery and we can’t find her hair tie. And then right before we came up here the post-op nurse found, I guess in the OR they had bagged up her hair tie and had it in a plastic baggie for her. So, she still has her hair tie. I’m glad I got up and did my vest. Yeah, so I think you should not talk and… [Peter] just rest for now. I was sitting here and I started hearing that helicopter. [Peter] Yeah. And it’s one of those things that no matter what… I’m feeling right now, like, that instantly snaps me out of like… my own pain, I guess. Reminds me that… somebody else is having a very… difficult time right now. Pray for that family. We’re trying to just let her rest. Let the blood clot in her sinuses. Sinuses are just tiny and sensitive and so there’s inevitably a lot of bleeding. But it’s already like… massive amounts… [Peter] Better than last time. Yeah. [Peter] Better than both times. I would say pain is a little worse this time than last time. [Peter] Yeah. [Peter] Thankful for the same surgeon doing all these sinus surgeries so that she knows… Yes, that helps. [Peter] Yeah. [Peter] And I think especially for follow-up sinus surgeries, [Peter] because she like, knows what to expect with her sinuses, and… Yeah. [Peter] All that. It’s interesting because when I… told you, like… it feels like the left side is more painful. [Peter] Yeah. But you said the right side- [Peter] Well, she said the right cheek was… [Peter] Um, she had to wash that one out a lot, but I don’t know. I don’t know if maybe she… Maybe the drilling. [Peter] The drilling might have been the left upper, which would make sense for where you’re putting that ice pack. But it’s done! [Peter] Yeah, good job, honey. A week ago I was sitting on the floor… Oops. So dry. I’m sitting on the floor by the front door. My doctor called… And we were deciding on the IV plan. And he said, I talked to your surgeon and she has some time on July 5th. I looked at the calendar and I went oh, that’s a week from today. Okay. Okay, that’s fine. It felt like, really sudden. But oh my gosh… My surgeon said that she’s booking out… like this, she’s on call, and so it worked. She’s booking into November, and to think of having headaches from now until November. I was just so thankful this worked. [Peter] Yeah. So the inevitable happened. Uh… Mary threw up the blood that had kind of drained into her stomach. And so that caused her nose and sinuses to start bleeding out her nose as well. But I think it’s…. calmed down. This happened last time as well. But number one, she threw up a lot more blood last time. Number two, the bleeding is more under control after throwing up. I mean, it’s not as under control, but more under control than last time. So… Keep on, keep on going. [Peter] Mary’s pain has gotten a bit worse as the day’s gone on, but she’s a trooper. [Peter] This little guy’s a little companion. Well, this is pretty much our day today. The pain has just gotten worse and worse. Yeah, as the day’s gone on, the pain’s gotten worse. I think there’s some good things, there’s some hard things, and we keep pressing on. Mary’s pretty much been in that position all afternoon. She was able to sleep for a little bit, right? I think yeah, I slept for a little bit. A little bit, but we’re gonna wrap it up here today, guys. Thanks for cheering us on and for, let’s give Mary a thumbs up for… pushing through surgery today, and as always… [both] We’ll see you tomorrow. Good night. And good night to the Ollie boy. Look at his little doggie over there. So cute. [Peter] Good night buddy. ♬♬

Comments 100

  • 🔪👃🏻 we did what we had to do 💪🏻

  • go go go go 😍

  • Hi, Fantastically well done, Mary. You too, Peter, and great job Ollie, helping Mary with her pain like that. I have a question, though. Is there a reason why you don't get better pain relief? I live with chronic pain and I kind of, sort of, know what that pain feels like. I also know that there is a whole arsenal of meds to help you with that, especially as an in patient. Either way I hope you feel better by now (Monday) and your life will be a little easier. Yours, Ann

  • Ughhhhh! I can't stand the first day after surgery! That's ALWAYS the toughest! You Got This Mary! Wishing and praying your pain eases today and your blood-flow slows to normal! Blessings, Grannie Annie from Maine

  • I thought you had that last year as well? All I know is.. I can’t watch you after surgery. It makes me sick to my stomach and upset seeing you like that. And I practically live in the hospital myself, with ehlers danlos and seizures!

    I’ll be praying for you!

  • Gute Besserung aus Deutschland!👍🏼🍀

  • I’ve never seen anyone look so beautiful just after surgery. Praying for you both 🙏🏻

  • Mary, you are an amazing person, always thinking of others’ suffering over your own. May you heal well from your surgery. God bless you both, and sweet Ollie, too. 💕🙏👍

  • Hi you guys are the most beautiful people. ❤️

  • It was very emotional watching Mary go through all of the pain. I don't usually comment on your videos, but I just had to tell you how much I love you two. I watch you every day and you actually add so much to my life. Stay strong Mary. I'm praying that the new medication will be the best thing since sliced bread.. Blessings from Northern Canada

  • My step sister was declared brain dead July 3rd…. and just passed away last night. She is only 35. Your encouragement and optimism impacts so many people…. Thank You Frey Life <3

  • love you guys, quick recovery!

  • ❤️❤️❤️

  • Hang in there Mary, we are cheering for you!!

  • “See you on the flippity flip” is that what I heard? Was that an office reference

  • Hope ur surgery helps you Mary and you have a speedy recovery x

  • I'm praying for your recovery.You can do it,Mary!God is with you.

  • You are an inspiration Mary❤
    Stay strong. Ollie reminds me the inside of a big furry coat

  • ❤️❤️❤️❤️❤️❤️

  • NPO actually means Nothing By Mouth. Mary cracks me up “NPO means don’t eat”. ROFL. I 💕 you Mary.

  • I love how Ollie just takes everything in his stride and makes sure you're OK – such a great service dog and a truly wonderful partnership. We are looking into service dogs for my mobility issues and PTSD, which is how I came across your channel. Thank you for choosing Joy 🙂

  • Started watching your videos recently and instantly fell in love with your family! Cheering you on and keeping you in my prayers! Hope you feel some relief soon! Sending lots of love ❤️

  • Just curious how dog is allowed in hospital..is it allowed in U.S…also so glad ur ok mary.i suffer with severe c.o.p.d and asthma and bronchiectasis..im 44 yrs old so life is pretty poor sometimes..but u inspire me to never give up😊

  • You got this Mary! Hang in there. Hugs to all of you.

  • Peter is killing me with the sad music

  • I was surprised that you didnt pray🙏 together before surgery. ✌ #davesandersstepdaughter 🐞

  • 😍😍😍😍😍😍

  • Feel better soon

  • I’m in need of sinus surgery because I have scar tissue and inflammation through mine and seeing her go through this gives me hope in a way. Almost all doctors won’t do sinus surgery until you are over the age of 18 because of the fact your face is still growing and you have a higher chance of your sinuses“collapsing”. Being that I am 18 now it’s more just the game of when is the pain to much to handle. I have been almost scared to do it questioning if I should just keep suffering or go through with it. But I feel if she has had sinus surgery 3 times now I should do it. yes there might be complications but I should attempt to give myself a life without constant pain. So thank you for showing us because it has helped me.

  • Prayers for a fast recovery!

  • Sometimes when I have to do my vest I don't want to but I do it anyway

  • It’s probably not the best time to be vloging

  • We have a long running tradition in our family. When somebody in the family has to have surgery, we all get together the night before to have what we call "The Last Supper". Our friends think it's kind of creepy and dark but we think it's hilarious!

  • You’re a warrior! A rock star! You’re something else

  • Hope the pain subsides soon..LOVE YOU GUYS!

  • if she's in pain ask for medication

  • I know you guys don't respond to comments but just wondering what kind of service dog Olli is? Like for what exactly is he for? ♥️

  • 👍👍👍👍👍👍👍👍👍

  • I know I don't know you guys personally but I just feel so sad when I see you in pain/uncomfortable! I pray you have a speedy recovery! I am a kidney transplant patient and have had a ton of surgeries and I ALWAYS eat a full meal at 11:45 because I'm paranoid I'll be starving by 12:15 haha Plus I know how my hospital works and a surgery that's scheduled for 8am usually doesn't happen till like 4pm so there's that too haha ok maybe I'm exaggerating just a bit but I'm not that far off lol Glad you got it done and pray you're feeling better now!!

  • Mary you are so strong and beautiful! Even in the toughest physical times your light shines to those around you. Peter you are a wonderful husband at your wife's side through all the ups and downs of this journey. I love watching you guys navigate these times. Best channel on YouTube.

  • It's so nice that Ollie can be in the hospital too. Is it a special hospital that allows dogs does anyone know?

  • Sweet kids. Praying for y'all

  • Ollie looks so content on his ride to and from pre op.

  • 5:17 LOOK at Ollie smiling! It's a carnival ride for him to go on the bed! Dogs love a ride in the car! HAHA!!! xD

  • I was just thinking that Mary is really going to miss the children’s hospital when you move! No child life!!!

  • Prayers! Thank you for sharing Peter!

  • Hey .. Mary & Peter And Oliver …

  • Mary did you have sinus surgery again or was this a repeat vlog?

  • Hi Peter and Mary! I'm wondering: how do you deal with coughing while your sinuses are healing from surgery? Doesn't that cause a lot of bleeding?

  • Hope you're contiuing to recover well. You're both in my prayers. You got this, Mary!

  • ❤❤❤❤❤❤❤❤❤

  • I’m glad the surgery went well. I hope you are recovering well! 💞🙏💞 @thefreylife

  • Are they at Duke?

  • Prayers to our compassionate Jesus for relief from pain and a speedy recovery.

  • Girl, I just had open heart surgery 4 weeks ago. I was in the ICU for 2 weeks leading up to it and was quite a nervous wreck and honestly, I could not imagine what I would feel like on surgery day. When it finally came I was calm. I was totally at peace with what was happening. Had I not had surgery I would not be alive right now, my surgeon had told me that with certainty. I had prayed about it and although we don't really talk about that kind of stuff i know my CT surgeon is a man of faith so I was sure he has prayed about it, too. I've had many surgeries and this should have been the scariest because nobody knew if I would even get off the table but I knew that I was too sick and weak to live very much longer without it, I trusted my surgeon completely, and I trust our God, you know? But it was kind of strange to be totally at peace with such a huge operation. Small things have freaked me out much more but when you're ready, you're ready. Had you done this 2 months ago or even 2 weeks ago, you might not have been there yet. It all seemed to line up perfect… God's perfect timing! I'm glad you recovered and went home so quickly!

  • Das der Hund da überall dabei ist, ist echt der Hammer. Bei uns in Deutschland undenkbar.

  • Is that called mucus clearance ?

  • Love to the both of you, and Ollie boy❤️ watch you every day🌼

  • God bless, speedy recovery!

  • Again? You just had this done. You can't just have surgery every time you get a headache.

  • Sinus surgery ruined my life. The surgery caused Atrpohic Rhinitis (aka Empty Nose Syndrome) which means the nasal mucosa is damaged and now you have a hard time feeling air in your sinuses—it basically feels like your are suffocating. It is an absolute living Hell. You can read the story at Health magazine by searching What is Empty Nose Syndrome Mike Smallwood. ❤️❤️❤️❤️❤️

  • For those that are asking about y they do the surgery if they have to do it again less than a year later, I don't know if it's the same in Mary and Peter's experience but, from my experience it makes those months in between soooo much better!

  • This is my very first time watching you guys🤗

  • It has always killed me that whether you have the first slot in the early morning or if you are due in after nood you are still told to not eat after midnight like the body only clears food through at certain clock times rather than dont eat 8 hours or whatever before your surgery. I had a friend who was nothing by mouth after midnight but wasnt scheduled for surgery (outpatient so no chance of getting in early) until 4 pm..found out that day that she was hyperglycemic when she started shaking and fainting at around 10am and ended up in the er canceling her surgery etc

  • Im loving the new intro music, very suitable 🙂

  • You're both so strong. Here's cheering for speedy healing! ❤️❤️❤️

  • You do this so you don’t get headaches? Girl try chronic intractable migraines on a daily. Headaches are a breeze 🤷🏻‍♀️ on another note I really hope this helps in every way possible.

  • Praying for you💜

  • BLESS THE 3 OF YOU…

  • Hi Peter and Mary! If you don’t mind my asking, how did you go about making Ollie a service dog? I have a TBI, and would benefit from having one, but haven’t been able to figure it out. Good job Mary! I hope you feel better! You both are such an inspiration.

  • Wait I’m confused. I thought you had this surgery already? 😯 or am I dreaming ?

  • When Ollie has his “work vest” on, do you have to treat him differently? I’m very ignorant regarding this subject. He’s so sweet with Mary!

  • Love and healing!

  • New subscriber here 🙂 i came across your channel while obsessing over sinus surgery. I’m currently experiencing maxillary sinusitis. I’m binge watching your videos trying to recover. You guys are absolutely precious. I hope you get well soon. I didn’t get to see any fireworks either. ❤️

  • I’m in Nashville, having surgery tomorrow morning. I have a tradition where we go out to eat at a specific Chinese restaurant for my last meal! I’m lucky my doctor lets me go!!

  • Girl how do you look so beautiful coming out of surgery? I look like a drunk rat coming out😂😂

  • Bless your heart. Hope you feel better ASAP. You’re such a beautiful couple. Wish you nothing but the best. Xx

  • Mary you remind me of my BFF Frankie Crist

  • Mary, you are so amazingly strong…and Peter, you are such a rock. As a caregiver for my mom for several years, I know the challenges and support it takes. You both are in my prayers always!

  • ❤️ Nice people are nice… 💋

  • Just so you know, the captions on this video are a bit funky!

  • I just realized its Peter and Mary…like Spiderman.

  • Cheering you on Mary!!! Much love sweetie!! Keep on pressing on!!

  • I love the intro music

  • My 13 year old son had to have the same sinus surgery 5 months ago.

  • All the best with your recovery Mary. You are always so positive and joyful! God bless you both xx

  • Praying for you guys xx

  • Mary you are incredible! Thank you for sharing your journey through the thick and the thin! I'm a rare disease zebra, but you've taught me so much about the challenges you experience with Cystic Fibrosis.

  • cute doggo

  • We had sugary on the same day, I thought that was cool, It was on my ear though

  • Good things thing your surgery was first thing in the morning I’m in the hospital now and I have surgery tomorrow too but idk when so who knows I might be hungry all day

  • Pay for you I hope everything go well love you guys keep up the good work ❤❤❤❤

  • I don't know if I should be writing this, I'm just crying a little bit because one of my best friend died of CF when he was 17 and you both kind of allow me to understand better what he had to go through. He didn't have the resources you have (it was 8 years ago or more) I'm so happy everytime you can improve your life thanks to advanced medicine or things like the vest (or Ollie)
    I miss him so much, but I'm so happy at the same time that you are able to get all that help and support. Sorry for the silly comment.

  • Dose Mary have any weird side affects after surgery usually or not

  • I hope you get better soon ❤️

  • I also have cf I’ve had 9 sinus surgeries I’m only 14 I need another tbh and I love how vancomycin levels are always wack😂

  • “Shaved my legs, feel ready for surgery.”

    I felt that.

  • I have CF and have had two of these surgeries. Not too fun.

  • I feel so bad for you Mary I'll be here for you every single day if you're sick I'm here is surgery poopy okay don't worry I had one too oh my stomach but it didn't hurt I'm good I'm better I love you so much port😘😢😭👍💏👭

  • Sounds like Ollie & Hannah are buddies. Mary…..I'm am still so surprised how you are hardly coughing at all. It really is a blessing. So happy for you.

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