🏥 CYSTIC FIBROSIS INPATIENT WORKOUT | HOSPITAL DAY 12 🏥(8.10.18)


Okay, it’s hard but it was good. It was a good kind of hard. ♬ Don’t you think we’re better together ♬ ♬ Oh Honey ♬ ♬ I think we are ♬ Good morning guys. Good morning. [Peter] Just getting up and started for the day. The team just rounded and… Good news. I’m feeling way less angry this morning. [Peter] Oh good. I just, I don’t know… So this is really crazy. [Peter] What? For the first time in over two years… [Peter] Yeah? When I was doing IVIG last night… [Peter] Oh, yeah. So during IVIG because it’s a blood product, it’s… blood donors. It’s part of the blood. [Peter] So it’s, every dose is different. Yeah, so there’s risk for variability and risk for reaction. So that’s why I take my vitals throughout every dose. But it was interesting last night, my nurse hooked me up… and we’re doing IVIG, whatever. I took my pre-meds as always. Oh, that might be different. [Peter] What? I think the tylenol dosing was a little bit less than my home dose. [Peter] Hmm. [clears throat] But anyway, you know, I’m sitting here with the blood pressure cuff and taking my temperature and oxygen and everything and like… testing. Everything’s good. Start the dose. 30 minutes later we check everything again and increasingly my temperature went up two degrees to a low grade and my blood pressure went up pretty significantly. Well, I don’t know. Yeah… And I was just like sitting here in my like, IVIG, like… Whatever. I was awake, but she took my temperature and then she kind of like looked at it and re-did it. And I was like, what is it? And she told me it was low grade fever. Now that I think about it I’m gonna lay back down. Um… Anyway, and then she told me the… [clears throat] blood pressure was up, which was just weird and I was… it never escalated. Like, it was totally fine it and never got bad but I was just like, oh, I’m really glad I’m here. [Peter] Yeah. For that dose that made me… I think it was a fluke. I think the low grade was a fluke. I think the… [Peter] The IVIG was fine. Yeah. But… That happened. [Peter] Yeah. And the plan for today is do blood work. Bet you couldn’t guess that. [Peter chuckles] And my kidneys got better. I think we said that. [Peter] I think so. We’ll check them again today and… We’re gonna do an ultrasound of her spleen just to make sure it’s doing okay. There’s risk with doing neupogen that with Mary’s enlarged spleen her spleen sucking up even more blood cells because neupogen is causing her body to make more blood cells. So… We’re just gonna make sure that her spleen is doing okay. Mary, from time to time over the last couple months has had spleen pain, like random spleen pain, so… it’s good to just make sure that… everything is okay. So she can’t eat or drink. We just stopped her feeds. That was a nurse just popped in and said… they’re gonna try to fit her in the schedule today to get… that done so… Welcome to day 12 in the hospital. [Peter] All right, Ollie and I just got back from a walk and it’s time for Mary to go down to [Peter] ultrasound. Here we go. [Peter] We made it down to ultrasound. Mary got a glimpse through a window in a hallway of… [Peter] of the outside world. What was that like? It was um… taunting. [Peter] Taunting. [chuckles] [Peter] Aw. [Peter] Let’s see how that spleen is doing. ♬ chill music ♬ Would it be inappropriate to climb in that sink and take a bath? [Peter] There’s a big sink in there? Well, I mean it’s not big, but as I was washing my hands… [Peter] You wanted to crawl in? The warm water was like…yes. I’m kind of like curious if I’m gonna be getting another low grade today. I’m starting to feel like… [Peter] Interesting. But I don’t know. I mean, hopefully it was just a fluke but… Fluke but? [Peter chuckles] A fluke but? I had this instinct to grab this wand… and sing a song. [Peter chuckles] Ew… Maybe not. [singing] I need you more than anyone, darling. [singing] You know that I have from the start. [singing] Build me up, buttercup baby. Don’t break my heart. [Peter] Yeah! One benefit of having a super extensive liver ultrasound is that I’ve been out of my room for over an hour [Peter] Whoop whoop. That’s a first. [Peter] Celebrate the little things. There’s always an upside, you know? Oh, what was I thinking, that song? [Peter singing] Celebrate good times. [both singing] Come on! [Peter] Apparently they went with a like, igloo… [Peter] snowflake, penguin theme because it’s so cold in here. Yes! Brr. And then let’s put gel all over your entire abdomen and then let it be in the freezing cold. [Peter] Okay. Yes, let’s do that. [Peter] Maybe that is why they went with the Arctic theme. In my experience… when the ultrasound person goes out to show the doctor and then they don’t come back for a long time, that usually means the doctor is going to come in and say, “we just need to take one more picture.” [Peter] Which means like half hour or more. And it means something didn’t look right. But reality is my guts are just crazy. And so when new people look at my guts… [Peter] Maybe it’s just taking awhile because they’re busy. Who knows? They’re really busy. Hello. I’m about to go to the gym, but my nurse just came in and blood work today was lower like, my, you know, all my whites and… platelets and everything was like dropping which, in my opinion is to be expected, but they might want to do more blood work later. Because we just need to make decisions about if I need to do neupogen again or whatever. So we’ll do whatever we need to do and Ollie and Peter are gonna go on a walk. Oh, Ollie looked at me like, wait, really? Bonesy, are you gonna go on a walk with Peter? You are! Oh yes, oh, the tail wagging. [smooches] I love you. I love you, too. I love you too. Aw, look at all the love. Aw, big happy family. [Mary] Pro-tip, bringing apple juice in case your blood sugar- [both gasp] [Mary] Drops… [Mary] Drops like I just dropped it. [Mary] Also, another pro tip, get your mask on and get ready to go so that the second they’re here you can get out of your room. Okay. We’re at the gym and I’m gonna set you up so you can watch… watch me. Oops. Okay. So last time you just did step-ups. Yes. This time… Face this way. Okay. Sorry. We’re gonna do step up. Kick. Step down. Touch. Good. So let’s do… Yeah, we’ll do thirty seconds on one side. If that feels tolerable. Yes. Then we’ll do thirty seconds on the other side. Good. ♬ upbeat music ♬ Chest up, butt back. Butt back. Yes. Okay. ♬ upbeat music ♬ Feels like way more than ten. Do one more just for good measure. ♬ upbeat music ♬ Perfect. So, from here…hands to opposite shoulders. And then down. Beautiful. It feels like a good amount of hard. Try to keep your hips as neutral as possible. Minimize the movement. [Mary grunting] Good job. ♬♬ Last one each side. Good! Rest. Ah! ♬ upbeat music ♬ Step up, kick. Yep. Down. ♬ upbeat music ♬ I’m gonna see how long you can go. [coughing] Wow. That was… That’s a good look. ♬ upbeat music ♬ Okay, it was hard but it was good. It was a good kind of hard. Thank you, Jenna. I consider that progress. I worked out and when [clears throat] When I needed to decide that it was, that my body was done… I confidently said I’m done and I didn’t even cry, because if you guys remember I was trying to like… listen to my body, but then also not feel like a failure by saying I’m done, a few days ago, maybe like a week ago. My first time in the gym in this admission and it ended in tears, but today… I did my best. I said, yep, that’s all I can do and we moved on. This dose of imipenem, which is hanging right now, I took less nausea meds, and I’m doing okay. The anesthesiologist who comes for acupuncture recommended that I get these Sea Bands. Um…it basically puts pressure on… an acu… pressure…what? A pressure point. Yes, a pressure point to help, potentially help with nausea. So I think… one, my body is getting used to the medications. In the 6 a.m. dose I’m not pre-med-ing with nausea meds anymore. So that’s awesome so I can just sleep. And the nausea doesn’t wake me up. So that’s a, that’s a good progress and that happened last time I was on IVs. I was able to kind of wean off that morning dose of nausea meds. So anyway. Good things are happening. Um, my headache is doing okay. I took tylenol earlier today and it’s helped. It’s better. So I was able to tilt during chest PT today. It put some pressure on my sinuses, but… reasonable pressure, not like outrageous. So good things are happening. My arm is shaking because of my workout. So I’ll see you guys later. I think I take it back. [Peter] What do you take back? I don’t know. I thought I was like feeling all good and great and wonderful but I think I’m feeling like… Maybe it’s just that late afternoon thing. I thought, I was thinking maybe the late afternoon… [Peter] Yeah. Nasty feeling was going away, but… now I’m like, ugh. I just got my blood drawn and… [IV beeping] Wait… [Peter] That’s offensive. I don’t understand. [Peter] Air in line. Grr. Um… She brought me a Looney Tunes band-aid. [Peter] That is cool. That’s really sweet and it takes me back to my childhood. [Peter] Did you show them what you’re trying out on your wrist? I did and um, I’m not sure if they’re working but… Whatever. [Peter] Worth a try. Um, they just had to redraw…I don’t know if we said that earlier. They redrew blood work to see if… my numbers were bad. I’m having a really bad vibe from this camera angle. [Peter] Oh, how about this one? How that? [Peter] Much better. [Peter with Mary repeating everything] What’s your takeaway from today? You trying to speech jam me? Maybe. What’s my take away? Mm-hmm. We did another day! Another day. One day at a time. That’s our take away. [both] As always, we will see you tomorrow. Good night! ♬ And we’ll end it with this little guy. Snuggled up for bedtime. Good night, buddy. We’ll see you tomorrow. ♬♬

Comments 100

  • 🎉cheering you on Mary🎉you got this🎉you killed at the gym🎉

    🍧🍧here's some ice cream for a job well done🍧🍧(((sharing optional)))

    🎵🎵 Look out Kelly Clarkson, Mary is in the house and Peter is her backup singer 🎵🎵

    💟soon enough you'll be home💟one step at a time, you're getting there💟

    💞🙌sending hugs & positive vibes💞🙌

    🌼have a great night🌼

  • My nausea is always worse in the morning.. glad you can wean off that dose.

  • Sea bands are great! I used them to treat morning sickness when I was pregnant and I use them now when I get a labyrinthitis flare up too. They really help. xxxx

  • What do you think of sea bands?

  • I'm surprised they're having you workout so soon after surgery. I wasn't allowed to even have my head upside down for a month after my surgery.

  • Your voice sounds better
    Good job all of you

  • Wonderful work out Mary. I understand the blood pressure and temp monitoring when you receive blood products. That happens to me when i get blood i really don't think I have my own blood anymore can't count how many transfusions I have had.
    But I love the Frey life. I'm trying to get my parents to watch your blogs I tried explaining your life to them but told them I would show them how to find it on the computer when i see them on Labor day. I hope Mary your spleen and liver are doing ok. I'm have liver and lung and blood problems do to my Lupus disease. I will be praying for you. I'm hoping to see Peter's sermon on Sunday. I enjoy them I can understand what he's preaching. I enjoy your sing also. Well Mary Peter and Olivier Frey have a wonderful night. 💜❤🙏🙏😴

  • I just recently started watching your vlogs and, well, wow. Just wow. You two are both incredibly strong and beautiful people. Mary, you are such a fighter. God gives his toughest battles to his toughest soldiers, and you have proven this. Peter, your steadfast love is inspiring and I'm sure this is your God given gift.
    Cheering for you from the sidelines! God bless <3

  • I want Mary's blanket so bad. I love it!

  • I used those Sea Bands when I was pregnant… it never got rid of the nauseous all together – but kept it at a tolerable level… hope they help Mary.

  • You show every day that nothing is impossible!

  • I know a lot of people who use those bands for car sickness or sea sickness and they seem to feel like it helps! Hope they can help you as well

  • I love her funny voices!

  • I got some of the sea bands last month and it was the best $8.00 spent!!! They work so well. Praying for you and Peter💜

    Random side question: i love the teal blanket, where is it from?

  • You are such a happy couple, with all the challenges you both face. Absolutely inspirational and I love checking in with you guys. Good luck xxx

  • After watching your PT/gym time, now I know why people are always shocked how active I am even with my JRA. I felt the same watching you. Just think we could really kick some serious booty if we didn't have JRA/CF. Btw, 1st Pres in your guys hometown and my " hometown" the Minster is retiring. My 89 year Aunt still attends every Sunday, and is still active in the church.

  • There was a shot of Ollie from the side where you could see his beautiful eyelashes! Hope you all sleep well.

  • I'm awake, I exercised and I didn't even cry 🎶

  • Good job Mary! You’re doing fantastic! So proud of you, and you should be very proud of yourself too 👍 love and hugs to the 3 of you, see you tomorrow!

  • Hello mary,and peter,mary looking good today,like u ready to go.but little things still going on,but u handling it well.peter seems at ease woth ollie.u goes in and out,u so funny,always never giving up.is that a different hospital bed,then normal?ollie ready to walk.gym,go girl.thats hard,how u do it?great! Listern to your body,not pushing it.those work,the store sells them,just put on your wrist wear them.during great mary,good night

  • WOW..what an awesome workout. I am in awe. I envy your ability. I don't know many healthy people that could do much like you did. GREAT JOB. I can't do any of that though PT and OT have me doing other less stressing exercises. Seems like this hospital stay is a good one and has brought good things for you.

  • Mary- you are so strong!! You're doing a great job!!

  • Singing the into 🙌😂

  • What a awesome workout! I couldn't do that one. Would collapse after the first 5 kicks! You're in much better shape than I am, that's for sure.
    I really admire your positivity and strength to push yourself to the limit.
    Your positivity is in any way a huge example for me. I'm depressed of all the stuff I'm going through, but I'm learning from you to live more by the moment, and enjoy the little things. Like you enjoyed your Bugs Bunny bandaid. 😉
    Thank you!!❤

  • Your great and so brave I love u

  • Sea bands don’t work for me unfortunately. Hope the nausea stays away for you!

  • I wonder if you started feeling badly a while after PT because your blood sugar might be dropping because of the workout. Hope you get to watch Peter preach tomorrow!💕

  • the bands you had on ur rists we use them when travelling on buses to stop ppl from vomiting

  • Sure do love your little family! I am so proud of your workout today (i am not sure that I could have done that!) I can't help but smile watching your guys. Thank you for sharing your life with us!

  • Mary great job working out.I think I'd be done after step ups and no way could I hold myself up in push up position so this is for you because you did awesome and are a winner. 🥇🏆

  • Looking great Mary!! Half way through!!
    I bet you miss the horses ! I know I would!
    My best to Peter and Ollie ♥️

  • Love you. Nice to see you doing so well.

  • I saw a service dog like yours the other day only it was a darker brown! Love you all!

  • I did a similar ab workout with my ballet students the other day and it's killer!

  • The most exciting part of a hospital stay is going down for tests! I was always excited when something different happened to break up the day and make it go faster. Also, that IV pole beep gives me bad hospital flashbacks lol. I always had the nurses turn down the volume on it and when it started beeping I immediately pressed the silence button and called my nurse in. Anyways, great video as always!! Your doing great Mary!

  • Do other CF patients use that gym too? How do they keep it safe for everyone?

  • Watchi g your PT & remembering do several of the same exercises when I broke my foot! Laying under my blanket just like yours! Still like new Kelly!

  • I thought you did great Mary!!!!!

  • Wow, Mary! You exercise better when you're sick in the hospital than I can do on my best days! I'm impressed!

  • I love your blanket. Where you get it?

  • I really like those moccasin boots you've got, Mary… they're super cute!!!

  • Love your boots

  • I noticed in previous videos you mentioned you're older then you look, I know it's not polite to ask a lady her age, but how old are you? I would guess you are about 29-30, no matter what, It's what is in the inside that counts! I hope you have a productive recovery and Gods Speed to you.

  • Mary, you amaze me everyday. You are a true fighter and rocking it! Prayers, love and hugs to all!

  • Look great Mary hi peter you are a great husband to mark god bless you both from Florida ❤️❤️❤️😍😍🌹🌹😇

  • Those squats and nose touches are killer

  • It always impresses me how much exercising you can do with your lungs the way they are. I take my inhaler before exercising and there are still times when I only last like 10 minutes. also, Seabands work AMAZINGLY!!!!!! I used to go to craneosacral therapy and she turned me onto them and they work great for nausea and my dizziness.

  • also, can Frieda come out and play this hospital visit???

  • My mom always gets the nausea patch behind the ears it's called a sea sick patch, last for 72 hrs! Maybe you could try that! You always make me smile! and you rocked the heck out of that workout. Never ever a minute goes by that you are not inspiring!!!!

  • So with each dose of IVIG, there are so many different people from all walks of life, with different eating and life habits donating, is it possible that because no two doses are the same, it can cause different reactions? I hope that makes sense. Sending well wishes to you both. You are doing amazing Mary, so inspiring, even when you have to say stop, no more. Listen to your body. Take care and have a very lovely day!!! AMB…Rose

  • I used those sea bands when i was pregnant and they were great!

  • That push up position shoulder tap exercise is my favorite conditioning for myself and my gymnasts. We call them cherry pickers.

  • Go Mary!! You are such an inspiration xox

  • The Frey Life your funny Mary wanting to grab the ultrasound wand as a microphone, at least it wasn't the one that goes up inside the unmentionable parts lol

  • The Frey Life Your beautiful Mary

  • Boy, Mary, I wish I could work out that fast! 😂😂 and 🐩🐩❤️💛💚💙💜

  • Mary and Peter are the perfect match

  • Hi Mary hope your doing well :)) when the beeping went off bc there was air in the line right before you said it I heard the beeping and I was like oh no there is air in the line I hate when that happens. Haha #cflife

  • Those planks with the shoulder touches are so hard! Way to go Mary!

  • The risk is spleen rupture which kills you.

  • I love the Looney tunes bandaid. Sometimes in life , it's the little things ❤🐰

  • mary where did you get your sea bands love them. mine are just gray

  • That workout was amazing. And one more thing; how does Mary look so beautiful in the hospital? With all the IV meds and surgery I would look like a hot mess.

  • Continued prayers to build you up buttercup!!

  • You guys are always upbeat and positive about everything that’s going on. No matter where you are or what’s going on you guys are in high spirits

  • Well way to make me feel out of shape

  • I never even notice the camera angle when Mary gets self-conscious about it. Heh.

  • I have those Seabandz too!! They really do work, hope you like them and they are another tool in your tool belt!!😊

  • You sound less congested! Amen for that!

  • Yay for SeaBands! I recommended those to you a few vids ago. 🙂

  • Please keep us posted if those wrist bands work!! I have terrible nausea and am trying to find a solution.

  • Todays message "you're stronger than you know!!!'

  • Spleen and liver ultrasounds are the worst. I hate it. 🙁

  • Whoop Whoop for Mary going to the gym!!! Awesome work-u did do quite the workout!!! I hope the sea bands work for you-nausea sucks!!! Still praying for y’all, and sending love + hugs!!

  • Curious, what components of the blood donors is in your IVIG?

  • My dog got really concerned at the beeping near the end haha

  • My daughter had those wrist bands for motion sickness and they did help prevent her from throwing up 🤮 some times. They helped her with the nausea but if we got on to a very winding road she would still throw up unless she had meds to prevent it.

  • Hello beautiful family love you guys !!!! 💕

  • in the uk we have free hospital treatments/admissions but pay for prescriptions and dental treatments. is america the same or do you pay for admissions/operations

  • Well done Mary!

  • Those plank position shoulder touches are no joke!! I SERIOUSLY struggle with them! Great workout Mary! Never a failure!

  • 💕🌹🥀🌺🌷⚘🌹🥀🌺🌷⚘💕

  • breast work mary – the sea bands are GRESAT, they help pregnant women with nausea and vomitting, so hopefully they'll work for you just as good 😉

  • and as I'm sure you will, check they are in the EXACT rich place, to get the pressure point 😉

  • I used seabands all throughout my pregnancy…. also the sticky things that you stick behind your ear….and both promethazine and zofran!

  • Love you guys keep up the good work xx

  • That’s a hard workout!!!! Definitely not what I was expecting!!! That’s a legitimate workout!!! Thank you for showing that. It definitely gave me some insight! You are strong girl!!!!

  • Good job Mary god bless 😘😘😘😘😘👍🏼👍🏼👍🏼👍🏼👍🏼👍🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼🙏🏼🙏🏼🙏🏼

  • I highly recommend the reliefband nausea/motion sickness watch. They work so much better for me than seabands.

  • How are you doing lately?

  • I love those sea bands.

  • wow Mary, that workout! I don't have CF and I would've been pooped!!

  • What’s the name of the sea bands. And where did you get them

  • When I see what you go through with your CF you provide me with such inspiration to get through my battle with depression and anxiety. I see you struggling with a physical illness and remaining incredibly positive at the same time. That lets me see that it doesn't matter how dark things get in my head or how wound up I get in worrying that I can always find (or at least try to look for) something small to celecbrate. Thank you so much for sharing your battles and for being my inspiration.

  • This video is awesome

  • Hi girl , hope you doing good. I’m your friend from SAUDI Arabia. I have the same Disease you had . My doctor told me I should do a transplant surgery.

  • Your life sucks so bad, the hospital is the worst.

  • I'm so jealous of your workout, my balance has gotten so much worse in the past five years that I'm not able to do as much as I used to and it's upsetting.

  • i didn’t know that you did ivig also!! me too!

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